Spina Bifida: Resource List
http://www.sbaa.orghttp://www.nichcy.org
Books for Children
Ages 9 to 12
- All Kinds of Friends, Even Green!; by Ellen Senisi; Woodbine House, 2002
- Featherless; by Juan Filipe Herrera; Children's Book Press, 2004
Young Adult
- Spinabilities: A Young Person's Guide to Spina Bifida; by Marlene Lutkenhoff; Woodbine House, 1997
Books for Adults
- Children with Spina Bifida: A Parent's Guide; by Marlene Lutkenhoff; 2nd ed., Woodbine House, 2008
- Living With Spina Bifida: A Guide For Families and Professionals; by Adrian Sandler; University of North Carolina Press, 1997
Other Resources
Spina Bifida Association of America
4590 MacArthur Blvd., Ste 250
Washington, D.C. 20007
202-944-3285
1-800-621-3141
Email: sbaa@sbaa.org
http://www.sbaa.org
Its mission is to promote the prevention of spina bifida and to enhance the lives of all affected. SBAA provides many services, such as: Toll Free 800 Information and Referral Service, Bi-monthly Newsletter, Publications, Scholarship Fund, Public Awareness Campaigns, and Member Services.
National Information Center for Children and Youth with Disabilities
P.O. Box 1492 Washington, DC 20013
1-800-695-0285
Fax: 202-884-8441
E-mail: nichcy@aed.org
http://www.nichcy.org
National information and referral center that provides information on disabilities, and disability-related issues for families, educators, and other professionals. Its special focus is children and youth (birth to age 22).
Compiled by Catherine Smith, MLS, medical librarian at the Family Health Library, The Children's Hospital, Denver, CO.
Pediatric Advisor 2012.1 published by RelayHealth.
Last modified: 2008-08-11
Last reviewed: 2010-06-04
This content is reviewed periodically and is subject to change as new health information becomes available. The information is intended to inform and educate and is not a replacement for medical evaluation, advice, diagnosis or treatment by a healthcare professional.
© 2012 RelayHealth and/or its affiliates. All rights reserved.
